Palliative Care Resources
Collaborative Project to Sustain a Palliative Approach to Care
Purpose of Family Resource Package
The Family Resource Package has been designed for long-term care team
members to share specific resources with individuals living in long-term
care, family members, and carers.
Overview of Family Resource Package
- What is the difference between Palliative Care & End of Life (EoL) care? What are the benefits?
- Understanding disease progression, and how family and carers can support their loved ones:
a. Progressive neurological illnesses, including dementia
b. Severe kidney, liver, or heart failure
c. End stage lung disease
d. Other life-limiting illnesses - Understanding Advance Care Planning (ACP), Goals of Care conversations (GOC), and Consent
- Grief and loss
- Self-care
1. Palliative care key elements and benefits
While not tailored for the Long-Term Care (LTC) sector specifically, this guide uses “resident” friendly language, and covers many key topics: what is palliative
care, what to expect, what is a substitute decision maker.
2. Understanding disease progression, and how family and carers can support their loved ones:
Strengthening a Palliative Approach
Introductory brochure for residents with dementia, their family, and friends.
For those who want to have more in depth knowledge/
Approach for Advanced Kidney Disease
Introductory brochure for residents with advanced kidney disease, their family, and friends.
Approach for Advanced Heart Failure
Introductory brochure for residents with advanced heart failure, their family, and friends.
Approach for Advanced Lung Disease
Introductory brochure for residents with advanced Lung Disease, their family, and friends.
Introductory brochure for residents with advanced Frailty, their family, and friends.
3. Understanding ACP, GOC, and Health Care Consent (HCC)
Advanced Care Planning Workbook – [click here to view]
Includes both an online and downloadable version of a workbook, and is available in English and French.
Making Decisions about your Care
2 page resident/family resource that differentiates ACP, GOC and HCC.
Advance Care Planning, Goals of Care, Decisions & Consent
A patient/family resource with frequently asked questions about ACP, GOC, and Consent.
A patient/family resource to support the formulation of ideas regarding goals of care conversation.
4. Grief and Loss
Anticipating a Death [click here to view]
Long Term Care –Grief and Loss
Honouring Grief and Increasing Resiliency
10 Things to Know about Your Grief [click here to view]
5. Self Care
Taking Care of you – Self Care for Caregivers [click here to view]
The Art of the Possible
